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Wednesday, 27 May 2009

  • I've Graduated to Every Six Months! Woo Hoo!

    I admit that I was nervous about my latest visit to MD Anderson for scans. As usual, I was imagining symptoms for a few weeks before my visit. But my scans were CLEAR! So my doctor said I don't have to go back until November. I'm SO excited about this. I am now ALMOST three whole years CANCER FREE!

    This is not something I thought would happen to me. But God has been merciful and gracious, and .... guess what? I'm probably going to make it to 50 after all. Just five more months. Most people dread turning 50, but not THIS CHICK!

Thursday, 30 April 2009

Saturday, 24 January 2009

  • Latest MD Anderson Visit

    It is obvious that there were lots of people praying the prayer I requested: “big, juicy veins” for my trip to MD Anderson earlier this week. The first nurse got an IV in on the first try, and it lasted the whole day for ALL of my tests. The phlebotomist even drew blood on the first try. So… yee ha! All day long the nurses double checked and flushed my IV after looking at it dubiously, saying “this might not work for the CT,” and as I lay there on the CT table I sent up one last “please, Jesus,” and then “thank you, Jesus!”    Wooo hooo!  It was a long day of tests, but I don’t mind waiting if the reward is not having to be stuck a dozen times and not having filtration.

     

    Oh… and my scans were clear too. But I knew they would be. Whatever they saw in the PET scan 4 months ago was no longer visible. But the Holy Spirit had already told me that!  My onc says that if my scans in May are clear, I can graduate to every SIX MONTHS. I am so very thankful to my Father in heaven for his graciousness and kindness to me. It has now been almost two and a half years since my last tumor.

     

    “… I am the Lord, who heals you.” Exodus 15:26 NIV

     

Saturday, 29 November 2008

  • "Practicing" Medicine

    I finally heard from the GI doctor on Wednesday. He was ... hmm... conservatively optimistic. He said he felt sure there was nothing to be concerned about, but he did see a couple things he wanted to consult with my oncologist about, just to be sure, before writing the report. "Did you eat anything red the day before?" I wanted to say, "Gee, I don't remember. It's been so LONG!" But I didn't. :) What he described sounded like a piece of tomato skin to me.

    He hadn't been able to get in touch with my onc. It was the week before Thanksgiving, so my onc was probably out. I'm taking it as good news. I have a feeling they'll just want me to come for my regular scans in January and take it from there.

Tuesday, 25 November 2008

  • Still No News

    My last entry must have sounded pretty pitiful. That's what happens between brain and fingers on the keyboard. But I'm not nearly as pitiful as the words on the page look. I'm always hopeful.

    I called MD Anderson twice yesterday, and apparently there's no report yet. So I emailed the gastro clinic. Surely I'll hear something today. In the meantime,

    "My soul, wait in silence for God only, For my hope is from Him." Psalms 62:5 NAS

Sunday, 23 November 2008

  • Still Waiting

    Thursday I swallowed a pill camera at MD Anderson so they could take pictures inside my intestines after having a PET scan light up in the area where they sewed my intestines back together two years ago. Dr. Dekovich, the gastroenterologist, said he would look at them the next day. So I was hoping to hear something Friday.

    Sigh. But of course I didn't. Here's what goes through my mind:

    A. Dr. Dekovich didn't look at them until late in the day and so my onc, Dr. Papadopoulos, didn't get the report in time to look at it.

    B. Dr. Dekovich looked at it right away and sent it to Dr. Papa, who was in clinic all day and didn't get a chance to review the report.

    C. Dr. Dekovich looked at the pics with Dr. Papa, and they decided to present my case to the tumor board on Monday morning to determine the next course of action.

    I'm trying really hard not to think about "C." But it's there in the shadow. In the past, if they knew there was a tumor, they would tell me that they'd be discussing it with the tumor board.... except for the last time, when no one told me ANYTHING, even though I called and asked, and they just made an appointment for me with the surgeon. I am inclined to think that the last time was actually a slip-up, because until then, Dr. Papa had always called me right away if he saw something. And if it was nothing, a PA or nurse would call and tell me. So, if that's the case, then someone would have called me if there was bad news or good news. That's why option C is just "in the shadow" ... because when it comes to over-analyzing a situation, I usually "accentuate the positive."

     

Tuesday, 11 November 2008

  • Another MDA Visit

    Next week I'll be heading to Houston again so they can take a good look inside my intestines and make sure there's no cancerous activity... which I highly doubt. Don't ask me why... I just do. Okay, I'll tell you. It's called Peace with a capital "P" ... the kind that comes only from the Holy Spirit.

    My PET scan in September "lit up" around the area where they sewed my small intestines back together over two years ago, so they want me to swallow another camera pill so they can see what's going on. I was supposed to go a few weeks ago, but they postponed it because the doctor wasn't going to be there. I have no idea WHY he NEEDS to be there. I'm just going to swallow a pill and wear a computer around my waist for 3 hours and then go home. But I figure if they're nonchalant enough about it to postpone it by three weeks, then I'm not going to worry. So there. I'm not worried.

Thursday, 25 September 2008

Thursday, 04 September 2008

  • Melanoma Support

    Well, I just learned that a site called www.mymalignantmelanoma.com posted a link to this blog. The reason I started this blog several years ago was to help get the word out about prevention, so I'm honored that they are using my blog for that purpose. Over the years it has become a "here's what's going on with me today" type of blog... not always melanoma-related because (HOORAY!) my life no longer revolves around melanoma day in and day out. Yeeeeeha!

    Yes, I am a Stage IV patient (meaning that it has metastasized beyond the lymph nodes to other areas within my body), and melanoma is expected to return to my body...but I am now TWO YEARS TUMOR-FREE! So... there IS hope. And I have it! "They" expect it to return, but I don't. I am very happy to be an encouragement to other patients and caregivers. And... now that I have another website/blog as well as a FaceBook page that are NOT focused on Melanoma, I will try to focus this one a little more on melanoma and everyday life.

    Speaking of that... I'll be heading to Houston for my next set of scans on Sept. 23. My dentist saw something abnormal in my jaw x-ray, so I'll be making sure they takn an extra look at that. The shadow of melanoma is always hanging over me... but I am truly hopeful ... I BELIEVE that it won't be showing up again any time soon. 

Wednesday, 23 July 2008

  • Find me on Facebook

    I listened to a teleseminar last night about promoting yourself as a performer by using social networking sites like Facebook and MySpace. So I spent the rest of the evening and most of today creating a Facebook page for myself and a public page for my gigs. Even if you aren't a member of Facebook, you can visit my Gig Facebook page. If you ARE a member, I would be honored if you would sign up to be a "fan" so that potential venues will see that I have a following. It's also a good way to keep in touch and keep you informed of upcoming events and gigs.

    find_us_on_facebook_badge

     

     

     

Sunday, 06 July 2008

  • How Dare I Not Ask?

    The past two years has been a blessing. Two years ago on August 11, I had surgery to remove a large melanoma tumor from my small intestines. It was the second such surgery in fifteen months, the fifth surgery due to metastatic melanoma in two years. To go from five surgeries in two years to NO surgeries in two years is something to be thankful for.

    So I don't mean to sound ungrateful to God for the extension of my life. In fact, for these past four years I have just accepted the lymphedema as a consequence of my battle with cancer, and tried not to complain too much about it. Every time I start to complain, I follow it up with ". . . but I'm alive!"

    But, God whispers things in my ear constantly about my faith, and today he whispered: "If I can heal you of cancer, I can heal you of lympedema." Accepting my chronic lymphedema is like putting limits on God. Instead of asking him for further healing, just as I resisted asking him for healing from the cancer . . . I have basically just told him, "It's okay, God. I can handle it."

    But that's not the response he wants from us. He wants us to ask so that when he obliges us, we will know that it is from him. And he wants us to have faith that what we ask for, we will receive.

    "If you believe, you will receive whatever you ask for in prayer." Matt 21:22

    "Which of you, if his son asks for bread, will give him a stone? Or if he asks for a fish, will give him a snake? If you, then, though you are evil, know how to give good gifts to your children, how much more will your Father in heaven give good gifts to those who ask him! Matt 7:9-11

    It seems as if my lymphedema isn't going to go away, that I'm going to be burdened with it forever. Today it seemed as if it's just getting worse. I went to therapy 3 times a week for six weeks, and when my new compression sleeve arrived, I thought I would be good to go. But instead, I have been swelling more. I gave up my guitar lessons in April because I had to wrap for my lymphedema so often, I wasn't able to practice.

    And now I just want to be able to play ... at my gigs, at church . . . I want to be able to use my music to give God glory. So looking at my swollen hand today in church, I was forced to come to grips with the fact that I really do want God to heal me of this. I have used it in the past to "witness" to people about the dangers of melanoma. And about how blessed I am to still be alive. But I'm ready to let go of it. I'm tired of carrying it around as a consolation prize and thinking "How dare I ask God to rid me of this when he has already given me so much?"

    Well, do I think it's too much to ask? Do I think that God just wore himself out healing me of cancer and can't be expected to do more? I should dare to ask him, because God wants me to. It's more than just a nuisance. It threatens my health, and it hinders me from serving God. I shouldn't just accept it. I should give it up to God.

    So there. I expect to be healed now. Thank you Jesus.

Friday, 06 June 2008

  • Crash Update

    I'm doing better, and very thankful that the crash wasn't any worse. After x-rays and a CT, nothing was found to be broken. But my face is still puffy and colorful 10 days later!

    I am SO thankful that I already had a lymphedema appointment scheduled for the following day because INDEED my arm swelled up big time. And it would have taken me a couple weeks to get in if I didn't have that appointment already. As I have said many times, anyone who thinks that God isn't in the little things just isn't paying attention!

    My insurance decided to claim liability on my part so that the other person in the accident wouldn't sue. I guess they figured it was just iffy enough that they could file a suit. I'm surprised, but ... oh well. I did enter the lane that he was already in. So I guess you could say it's my fault.... even if the law says that if you hit someone from behind it's your fault. I think since the impact was more on the side of the car than the back, it's as if I ran into him while merging instead of the other way around.

    The weirdest thing to me is the so-called fourth vehicle in the accident. After everything stopped, I saw a large maroon SUV sitting next to us to the rigt, and I thought that they were just sitting in traffic. But apparently she was involved in the accident... at least she claims to have been. I can't for the life of me figure out how. I pulled into the HOV lane from the lane just to the right of it. The guy in the Silver SUV in the HOV lane hit me on the back left corner, causing my car to swing to the left so that he could hit it again, harder, and push me into the truck that was originally ahead of me in the adjacent lane. The Silver SUV then continued straight ahead in the HOV lane until he stopped there. Thom started to get out of the car on the passenger side, but I noticed a maroon vehicle there and thought it was regular traffic. So I told him not to get out. He couldn't anyway because the door was dented from the crash into the truck. The maroon SUV then pulled over out of the way in the HOV lane. And I saw a silver scrape on the left side of her vehicle. 

    According to my insurance adjuster, that silver scrape actually TOTALLED the woman's SUV. My insurance adjuster has not been able to get a statement from the woman... and the woman has a lawyer. Huh???? We don't even know how she got the scrape. I can't for the life of me figure out what she could possibly have hit to have ended up in the lane to my right when all of the "action" was to the left.  I guess she's not happy to have a "totalled" vehicle. But, hey, at least she can drive it. My axle is bent and the front is squished in on both sides. Now THAT'S totalled. AND I get a whopping $2400 to buy a new car with. Wheeee! Look THAT up in your blue book and see what you find.

    Actually, I'm not complaining. No one was seriously injured. And even though my air bag didn't deploy and my seat belt didn't work properly, I'm fine. I'm a bit worried about the lady with the lawyer, but I guess we'll cross that bridge when we come to it.

Wednesday, 28 May 2008

  • The Car That Jackie Crashed

    We bought it used for a bargain - a 1998 Explorer Sport with hail damage. But don't all cars in Texas have hail damage? We affectionately called it "The Exploder." It was a dependable vehicle that was PAID OFF. We could haul anything in it. We didn't worry about messing it up. It allowed us to keep the mileage low on the Magnum while we paid off its note $800 at a time (with only a couple months left until it's paid off!).

    And then.... in the place that I ALWAYS KNEW I would have a wreck . . . because I have to travel there almost every day, and there is almost always a wreck within that 1 mile stretch . . . the LBJ Freeway, between Midway and Marsh.

    I slid across the lanes trying to get to the HOV lane so we could get Thom to the airport on time. But my last slide into the HOV lane would be the last slide forever for our dependable Exploder.

    A large SUV must have been flying in the HOV lane, because I never saw it coming, nor did I hear a horn or the squeal of tires. There were no skid marks on the road except those of dear old Exploder as it got pushed into a truck.

    The side of my face looks like it hit a freight train, but it was probably just the steering wheel. Dependable Exploder did not have a very dependable air bag . . . or the impact didn't hit the air bag sensor. The seat belt must have helped some, but not enough to keep my face from swelling like a balloon. Thankfully, nothing was fractured. And Thom wasn't hurt at all, nor were any of the other people involved in the accident. No, just our dear ole Exploder.

    explorer crunch

    Unfortunately, my left arm -- the one with Lymphdema -- was impacted. Luckily, it was wrapped, which protected it better than a simple compression sleeve would have. BUT... it has a big bump in it, and it's already swelling. With no lymph nodes under my arm, my chances of getting cellulitis are much greater... and cellulitus can put you in the hospital. So, I'm very glad that I already have an appointment with my lymphedema therapist today. Hopefully we'll get some of that fluid out.

    I had to postpone my gig. Not really because of what my face looks like, although I'm sure it would be quite alarming to the groupies... but because I can't play the guitar with my arm wrapped, and I absolutely have to stay wrapped after an injury. So, it's a bummer. But considering how bad it could have been... I feel quite blessed.

    jackies shiner and bloody shirt

    I'll admit my face is fat to begin with (not exactly my xanga profile photo from 10 years ago!)... but it's not normally THIS fat. Oh and, the blood actually came out of the blouse and jeans. How 'bout that? The nose, however, did not stop bleeding until sometime during the night. That was probably about 18 hours of bleeding. I'm almost afraid to take an Ibuprophen, for fear it will start bleeding again.

    Anyway... life is always exciting.

     

Monday, 26 May 2008

Thursday, 15 May 2008

  • My Next Gig

    I've scheduled my next gig for Thursday May 29 at Saxby's Coffee House on Midway/Alpha in North Dallas. I hope to see some new faces there. It's been a while since I've performed, and I'm looking forward to it.

    It's just me and my guitar, Sophia . . . performing folk/soft rock, some originals, and some contemporary Christian. For more info, see my wordpress site: www.jackiedoss.wordpress.com.

    Hopefully my lymphedema will behave between now and then. There's nothing more aggravating than knowing that I need to practice but not being able to because I'm all bandaged up to keep my arm from swelling out of control. Patooooey!

    tips_for_the_schlip

Wednesday, 14 May 2008

Saturday, 10 May 2008

  • Wanna read something funny?

    I should give my poor readership, such as it is, a break from poetry. While I know it's good for you to exercise your brain a bit and decipher some verse, I suppose you've had enough... for now. Muuuuuahahaha

    If you'd like to read something funny, you should visit my son, Ryan's blog. His entry from yesterday recounted shenanigans from his basic training. Quite entertaining. Here's the link to that specific entry: http://www.xanga.com/congratulations_im_sorry/656187705/me-a-drill-sergeant-and-a-pile-of-padlocks.html

    I commented to him that he should write about ALL of those things NOW while he can still remember them. I recall lots of funny instances from my youth . . . but not in enough detail to recount them now and entertain an audience. It's lementable.

    Only a few things really stick with me . . . one of which is part of a memoir called Pentimento by Lillian Hellman, the playwrite, and lover of Dashiell Hammett. She, too, mourned the loss of memories. One of Ms. Hellman's points in that book was that she wrote because her memory was not sufficient.... and that if she did not write, she would lose her memories altogether.  At least . . . that's how I remember it. :)

    "Pentimento" is the process of "repentance" that an artist goes through when he paints on canvas and then begins a new painting on the same canvas, leaving visible remnants of previous strokes beneath the final painting.

    I have been sitting here staring at my last words for a while now, trying to come up with something profound to say about our lives and "pentimento." But I think the concept speaks for itself.

     

     

Thursday, 08 May 2008

  • Dare I post another poem?

    Another poem from Gerard Manley Hopkins.

    God's Grandeur

    THE WORLD is charged with the grandeur of God.
      It will flame out, like shining from shook foil;
      It gathers to a greatness, like the ooze of oil
    Crushed. Why do men then now not reck his rod?
    Generations have trod, have trod, have trod;
      And all is seared with trade; bleared, smeared with toil;
      And wears man’s smudge and shares man’s smell: the soil
    Is bare now, nor can foot feel, being shod.

    And for all this, nature is never spent;
      There lives the dearest freshness deep down things;
    And though the last lights off the black West went
      Oh, morning, at the brown brink eastward, springs—
    Because the Holy Ghost over the bent
      World broods with warm breast and with ah! bright wings.

    Even in the midst of God’s grandeur, we still do not follow him (“reck his rod”: understand his ways).  Instead, because of the fall, we have separated ourselves from God, generation after generation . . . and we keep using “works” to try to earn what he has given us freely . . . even as the Holy Ghost, with his bright wings, holds us to his breast like a bird broods over her chicks.

JackieDoss

  • Visit JackieDoss's Xanga Site
    • Name: Jackie
    • Country: United States
    • State: Texas
    • Metro: Dallas
    • Gender: Female
    • Member Since: 1/13/2005

The Mandatory Profile

  • When I was young, I would have said I am a creative soul lost in world that didn't understand me. Such angst would have filled this page! Now, I'm 47 and, thanks to Metastatic Melanoma, may not live to 50... but there's no angst here!!! Just spiritual growth. Read if you dare to lose your angst.

Pulse

  • I had to write something here so that the box would no longer say "Jackie Doss has no pulse." Not a good thing to read about yourself.